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African News Herald > Blog > Health > ‘I Didn’t Know I Was Born With HIV’
Health

‘I Didn’t Know I Was Born With HIV’

ANH Team
Last updated: May 8, 2025 3:14 pm
ANH Team
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Saidy Brown and Tay Luree’s stories shed light on the struggles faced by young people living with HIV in South Africa. Brown was only 14 when she received her diagnosis, while Luree found out at 18. Both women grappled with the news and the stigma associated with the virus.

Brown’s initial reaction to her diagnosis was shock and devastation. She couldn’t understand how she, a 14-year-old, could be living with HIV. The stigma surrounding the virus made her fear being judged by others, so she kept her status a secret. She struggled to come to terms with her diagnosis, unsure of how to navigate life with HIV.

Luree’s story took a different turn. She found out about her HIV status when she was hospitalized for appendicitis. The revelation came as a shock to her, as she had never been told about her status before. Learning that her father had died after stopping his ARV medication added another layer of complexity to her situation. She grappled with feelings of betrayal and confusion, leading her down a destructive path of substance abuse.

Both women’s experiences highlight the pervasive stigma surrounding HIV in South Africa. Caregivers often hide a child’s HIV status out of fear of judgment, while individuals living with the virus may experience self-stigma and shame. The fear of being labeled as promiscuous or irresponsible adds an additional layer of complexity to an already challenging situation.

Despite the advancements in HIV treatment and care in South Africa, the stigma associated with the virus continues to impact the lives of those living with it. Brown and Luree’s stories serve as a reminder of the importance of destigmatizing HIV and providing support to those who are navigating life with the virus. By sharing their experiences, they hope to break the cycle of stigma and empower others to seek help and support. Since September 2016, South Africa has adopted the “test and treat” approach, offering antiretroviral therapy (ART) to anyone testing positive for HIV regardless of their CD4 count. This has been a significant step in the country’s efforts to combat the HIV epidemic and ensure that those living with the virus have access to life-saving treatment.

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One individual, Brown, shared their experience of starting treatment in 2013, four years after learning about their HIV status. This highlights the importance of early diagnosis and prompt initiation of treatment to ensure better health outcomes for those living with HIV.

Another individual, Luree, resumed her treatment in October last year after a heart-to-heart conversation with her aunt, who is a nurse. Her aunt’s support and guidance helped Luree realize that being HIV positive does not define her and that she can still live a fulfilling life while managing her condition.

Professor Khangelani Zuma, Executive Director at Human Sciences Research Council, emphasized the challenge posed by young adults who are unaware of their HIV status. These individuals, especially those born with HIV, play a significant role in perpetuating the spread of the virus if left undiagnosed and untreated. Efforts must be intensified to identify and bring these individuals into care and treatment to prevent further transmission.

In terms of children, there is a concerning gap in HIV testing and treatment rates, with only 76% of children diagnosed with HIV in South Africa currently on ART. This falls short of the UNAIDS targets of 95-95-95, which aim to end the AIDS pandemic by 2030. Factors contributing to this treatment gap include delayed diagnosis, challenges in the health system, and difficulties in linking children to care, especially those in vulnerable circumstances.

Majola highlighted the importance of early diagnosis and treatment initiation in children to ensure viral suppression and prevent the transmission of HIV. Non-disclosure of HIV status can lead to non-adherence to treatment, putting children at risk of opportunistic diseases and onward transmission of the virus.

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Overall, the adoption of the “test and treat” approach in South Africa has been a crucial step in improving access to ART for those living with HIV. Continued efforts are needed to ensure early diagnosis, prompt initiation of treatment, and support for individuals to adhere to their medication regimens for better health outcomes and to prevent further transmission of the virus. The sun rose over the horizon, casting a warm golden glow across the landscape. Birds chirped in the trees and a gentle breeze rustled through the leaves. It was a perfect morning, a perfect day for a new beginning.

As the world woke up to a new day, there was a sense of excitement in the air. People went about their daily routines, but there was a spark in their step, a twinkle in their eyes. It was as if everyone knew that something special was about to happen.

In a small town nestled in the countryside, a group of friends gathered in a cozy café. They had been planning this day for weeks, and now the moment had finally arrived. Today was the day they would embark on a journey of a lifetime, a journey to discover new lands, new cultures, and new adventures.

The friends sipped their coffee and shared stories of past travels and dreamt of all the places they would visit. They had a map spread out on the table, marked with pins and notes of all the places they wanted to see. From bustling cities to remote villages, from snow-capped mountains to sun-kissed beaches, their itinerary was filled with endless possibilities.

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As they finished their coffee, the friends gathered their belongings and headed out into the bright morning sun. They loaded their bags into a waiting van and set off on their grand adventure. The road stretched out before them, winding through lush green fields and rolling hills.

Their first stop was a quaint village by the sea, where they sampled local seafood and wandered through narrow cobblestone streets. Next, they visited a bustling market in a vibrant city, where they haggled with vendors and tasted exotic fruits.

As the days turned into weeks, the friends traveled far and wide, experiencing the beauty and diversity of the world. They climbed towering mountains, sailed on crystal-clear waters, and danced under the stars at a festival in a far-off land.

Throughout their journey, the friends grew closer, forging bonds that would last a lifetime. They laughed, they cried, they shared moments of joy and moments of sorrow. They learned about themselves and each other, discovering new strengths and facing challenges together.

And as they watched the sun set over the horizon on their last night together, the friends knew that this journey had changed them in ways they could never have imagined. They had seen the world, but more importantly, they had seen themselves. And as they said their goodbyes, they knew that this was not the end, but a new beginning.

As the van drove off into the night, the friends looked out the window at the stars twinkling in the sky. They knew that no matter where life took them, they would always have the memories of this journey, the memories of a perfect day that had turned into a perfect adventure. And they knew that as long as they had each other, there would always be more adventures waiting just around the corner.

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